Back to work after a lovely day off, those days off get shorter and shorter.
To cap off the gloom of having to go to the office today, not that I work in a bad enviroment in fact it's the reverse. Our Air Conditioning went down for almost the whole day.....
P
Tuesday, October 30, 2007
Sunday, October 28, 2007
Wind
I am having a wind problem, I know you maybe thinking that there is a tablet for it, but I refer to the weather type of wind. I keep taking the girls and anyone else who wants to join to the South Mountain Reservation to try fly a kite, this is a 90 second ride from our house. I check before we all leave that there is loads of wind, we get to the field and still it's blowing a gale. Once I have put together a kite.....NOTHING!!! No wind not even enough to blow out a candle. AAAAAHHHHHH. This has now happened 3 times in as many weeks. I hope that winter is almost on us that the wind levels will increase, and I will get to fly our kites.
Flying kites are a good life lesson for my girls, you have to keep at something to have success.
Flying kites are a good life lesson for my girls, you have to keep at something to have success.
Saturday, October 27, 2007
Auction House
Another busy day at work , the joys of working in a retail store is having to drag my sorry self in to New York on a Saturday. I am glad that I now have the next two days off. So whilst your all going to work Monday I think I will lie in.
The auction has a venue, I had lunch today with two nice chaps from one of the worlds leading watch auction houses. They agreed to run my event here in New York next year. Yippee another thing I won't have to worry about.
Have a beautiful weekend.
Phil
The auction has a venue, I had lunch today with two nice chaps from one of the worlds leading watch auction houses. They agreed to run my event here in New York next year. Yippee another thing I won't have to worry about.
Have a beautiful weekend.
Phil
Thursday, October 25, 2007
The Weather
The weather has turned chilly and damp and this morning made a change from hot and humid. I find it funny that I still mention weather in conversations, e-mails and now a blog. Talking about the weather is a national past time in England, I can't seem to shake the habit. If you run out of subject matter when engaging in small talk you can go on and on about the weather, and people will be polite and seem really interested.
Had a follow up visit with my Doctor yesterday. My last little bump in the road or should I say flare up in my symptoms, were soon calmed with a little help from Steroids, Pain killers and a little pill to combat fatigue. I have had so many chemicals go through my system recently I must be classed as a toxic hazard. The joys of medical science combined with the intricacies of chemistry, quite amazing and I am glad they work so well together.
I am still making phone calls trying to set up my charity auction. I am the type of person with absolutely no patience, so the wait is killing me.
I have met two very nice people this week, both lawyers who are giving me a helping hand in the legal department. I didn't realize that setting up a charity involved so much law and effort. I may have to stop making lawyer jokes now as they were so kind and didn't give me a hard time when I asked a dumb question. :-)
Phil
Had a follow up visit with my Doctor yesterday. My last little bump in the road or should I say flare up in my symptoms, were soon calmed with a little help from Steroids, Pain killers and a little pill to combat fatigue. I have had so many chemicals go through my system recently I must be classed as a toxic hazard. The joys of medical science combined with the intricacies of chemistry, quite amazing and I am glad they work so well together.
I am still making phone calls trying to set up my charity auction. I am the type of person with absolutely no patience, so the wait is killing me.
I have met two very nice people this week, both lawyers who are giving me a helping hand in the legal department. I didn't realize that setting up a charity involved so much law and effort. I may have to stop making lawyer jokes now as they were so kind and didn't give me a hard time when I asked a dumb question. :-)
Phil
Wednesday, October 24, 2007
Additional content
I have just added a guestbook and comment applications, on the right margin of this blog.
Feel free to use them.
Phil
Feel free to use them.
Phil
Tuesday, October 23, 2007
Nice phone call
Challenges today, Hot flushes, Eyes disjointed and really, really tired. I had taken a little pill this morning to help with the fatigue but it made no difference. I class this as a good day.
Got a call from Denise Lynch and a colleague (sorry I forgot his name- please forgive me, but even before MS my memory was useless-nice chap though) who work for Teva Pharmaceutical, makers of the MS drug Copaxone. They called me after I reached out to their local representative, great call, caring people. I look forward to driving them crazy with stupid requests and pleas for help.
Started thinking about the website today, which direction to take it and how it will be managed.
When I developed MS I found some excellent and informative sites with the help of Google, but as I delved deeper in to the mysteries of Multiple Sclerosis, I found myself going backward and forward to numerous sites and still not finding all the answers to the questions I had. We won't be able to cover it all, but I will give it a good try.
I NEED HELP!!!!
E-mail me if you want to lend a hand.
Phil
Got a call from Denise Lynch and a colleague (sorry I forgot his name- please forgive me, but even before MS my memory was useless-nice chap though) who work for Teva Pharmaceutical, makers of the MS drug Copaxone. They called me after I reached out to their local representative, great call, caring people. I look forward to driving them crazy with stupid requests and pleas for help.
Started thinking about the website today, which direction to take it and how it will be managed.
When I developed MS I found some excellent and informative sites with the help of Google, but as I delved deeper in to the mysteries of Multiple Sclerosis, I found myself going backward and forward to numerous sites and still not finding all the answers to the questions I had. We won't be able to cover it all, but I will give it a good try.
I NEED HELP!!!!
E-mail me if you want to lend a hand.
Phil
Monday, October 22, 2007
How to Name a Charity
Just in from a meeting with all the Ladies at Kinney & Kinsella. What a wonderful group who really got to work on the creating the name.
I can't tell you it yet as I have to get it all lawyered up, but it's brilliant, creative and gets the message across.
Making-Smiles will stay as my blog so keep checking back.
Phil
I am going to need people with writing skills, who can help me start the a website.
Any volunteers?
I can't tell you it yet as I have to get it all lawyered up, but it's brilliant, creative and gets the message across.
Making-Smiles will stay as my blog so keep checking back.
Phil
I am going to need people with writing skills, who can help me start the a website.
Any volunteers?
The week ahead
This is going to be a busy week.
I hope that the name Making-Smiles is a suitable name for the type of charity I want to start. Please let me know what you think.
There are lots of people who develop MS each in a different way. Some have one attack and then experience remission lasting years and others who have to deal with various degrees of the disease everyday . Getting medication, support and learning how to cope with attacks is very important and hopefully Making-Smiles will be able to help in the future, if only in a small way.
Today I am seeing Katie and Kerry the wonderful girls that run Kinney and Kinsella, a brilliant PR and Media firm in the heart of New York. These two beautiful people have agreed to help with my charity. Getting the message out the right way is very important, and K & K are the best at that.
Heat, I used to love heat but now I loathe it, it makes my symptoms worse. I have found that instant ice packs placed on the back of the neck a god send. The silly thing is I have to take a hot shower in the morning before I inject my medication, this is a daily ritual I am just getting the hang of. I have stopped asking my lovely wife to do the jab, as she is more asleep in the morning than I am and it hurts enough as it is.
Water, is now my best friend. Lots and lots of water. Buckets of the stuff.
As well as the odd beer. I never thought about keeping hydrated before but now it's a must.
Have a look at chumsweb.org , brilliant.
Phil
I hope that the name Making-Smiles is a suitable name for the type of charity I want to start. Please let me know what you think.
There are lots of people who develop MS each in a different way. Some have one attack and then experience remission lasting years and others who have to deal with various degrees of the disease everyday . Getting medication, support and learning how to cope with attacks is very important and hopefully Making-Smiles will be able to help in the future, if only in a small way.
Today I am seeing Katie and Kerry the wonderful girls that run Kinney and Kinsella, a brilliant PR and Media firm in the heart of New York. These two beautiful people have agreed to help with my charity. Getting the message out the right way is very important, and K & K are the best at that.
Heat, I used to love heat but now I loathe it, it makes my symptoms worse. I have found that instant ice packs placed on the back of the neck a god send. The silly thing is I have to take a hot shower in the morning before I inject my medication, this is a daily ritual I am just getting the hang of. I have stopped asking my lovely wife to do the jab, as she is more asleep in the morning than I am and it hurts enough as it is.
Water, is now my best friend. Lots and lots of water. Buckets of the stuff.
As well as the odd beer. I never thought about keeping hydrated before but now it's a must.
Have a look at chumsweb.org , brilliant.
Phil
Sunday, October 21, 2007
Why a Blog
Sunday morning, awake at 5.00am. Can you believe my back hurts...
Already realising that my posts will be all over the place, each time I think of one thing to write another five come to mind. I suppose I will have to get some discipline with this.
Here is why I am starting this blog, which is an idea of my brother Peter, Thank you Pete.
Multiple Sclerosis is the leading Neurological disorder in the 20-50 age group in the USA. Every hour another person in America is diagnosed with MS. If you don't know what MS is, I am going to fill you in on how it effects me over the next few years. You know it's going to get repetitive and boring, but that is what MS is all about.
I have been diagnosed with it and because of my situation in life, where I am lucky to have a great family, brilliant friends and working for a wonderful family doing something I love. Not forgetting the dedicated and caring team at The Saint Barnabas Multiple Sclerosis Care Center.
I will be able to cope.
So I am going to try and help other people with MS by launching a Charity. This is going to take lots of effort and I will need to raise loads of money. My aim is to make people suffering from this have a better life and bring them a smile. Because in life I have found that Smiling is better that frowning and laughing is miles better that crying.
So this blog will follow the start of this new Charity, and be a way of letting others know what help I need, If you can help me or have advice please e-mail or leave a comment. Over the next few weeks I will explain how I am going to raise the money as well as how it will be used.
And if you have MS, I send you a big hug.
Phil
Already realising that my posts will be all over the place, each time I think of one thing to write another five come to mind. I suppose I will have to get some discipline with this.
Here is why I am starting this blog, which is an idea of my brother Peter, Thank you Pete.
Multiple Sclerosis is the leading Neurological disorder in the 20-50 age group in the USA. Every hour another person in America is diagnosed with MS. If you don't know what MS is, I am going to fill you in on how it effects me over the next few years. You know it's going to get repetitive and boring, but that is what MS is all about.
I have been diagnosed with it and because of my situation in life, where I am lucky to have a great family, brilliant friends and working for a wonderful family doing something I love. Not forgetting the dedicated and caring team at The Saint Barnabas Multiple Sclerosis Care Center.
I will be able to cope.
So I am going to try and help other people with MS by launching a Charity. This is going to take lots of effort and I will need to raise loads of money. My aim is to make people suffering from this have a better life and bring them a smile. Because in life I have found that Smiling is better that frowning and laughing is miles better that crying.
So this blog will follow the start of this new Charity, and be a way of letting others know what help I need, If you can help me or have advice please e-mail or leave a comment. Over the next few weeks I will explain how I am going to raise the money as well as how it will be used.
And if you have MS, I send you a big hug.
Phil
Making-Smiles
It's Saturday and I am at work.
This is my first post and as the written use of the English language is not my strongest suit forgive my appalling use of it now and in the future. I can talk your ears off and make a living doing so, but the written word can still be a big mystery to me.
Just starting to set up this blog. Lots to say, lots to explain and loads of help needed. This blog will keep friends, family and anyone who cares to read up to date with things going on in my life, which this year has become quite interesting.
Not knowing where to begin, lets start this last May 2007 when the old body started to miss fire. I woke one Sunday morning with a splitting headache, double vision and pains throughout my body. To say weird is an understatement. Quick trip to the opticians and the nice chap there explained the my vision was perfect apart from the Double Vision. Then off to an Eye Doctor the next day and same diagnosis, but told something else in my body was probably causing the problem so I should see my regular Doctor for a physical. My wonderful wife got straight on her cell phone and arranged a full check up the following day. Now I could keep this going and make this a very boring read, and I do love to fast forward movies just to see what happens at the end. So after one optician, one eye Doctor, one Internist, 4 Neurologists. An X-ray, Blood tests I seem to remember loosing count after 19 vials of blood, A spinal tap ( I didn't like that one), and 3 MRI's. I have been diagnosed with Multiple Sclerosis.
So within a few months my life has changed, some things have got harder and others better. Physically things can suck, but I have great Doctors and support. More about my MS center in later postings and all the caring people who are helping me cope.
I have a wonderful wife, the lovely Fiona, and MS has made me appreciate and love her more. I may not tell her that enough, but I do. My two kids Abigail and Eleanor a joy watching them grow, a father couldn't be prouder. Our Families who live on the other side of the Atlantic Ocean in various parts of the UK, a beautiful collection of people. Everyone is helping and I couldn't feel happier.
I have Multiple Sclerosis but I am trying not to suffer because of it!
Phil
This is my first post and as the written use of the English language is not my strongest suit forgive my appalling use of it now and in the future. I can talk your ears off and make a living doing so, but the written word can still be a big mystery to me.
Just starting to set up this blog. Lots to say, lots to explain and loads of help needed. This blog will keep friends, family and anyone who cares to read up to date with things going on in my life, which this year has become quite interesting.
Not knowing where to begin, lets start this last May 2007 when the old body started to miss fire. I woke one Sunday morning with a splitting headache, double vision and pains throughout my body. To say weird is an understatement. Quick trip to the opticians and the nice chap there explained the my vision was perfect apart from the Double Vision. Then off to an Eye Doctor the next day and same diagnosis, but told something else in my body was probably causing the problem so I should see my regular Doctor for a physical. My wonderful wife got straight on her cell phone and arranged a full check up the following day. Now I could keep this going and make this a very boring read, and I do love to fast forward movies just to see what happens at the end. So after one optician, one eye Doctor, one Internist, 4 Neurologists. An X-ray, Blood tests I seem to remember loosing count after 19 vials of blood, A spinal tap ( I didn't like that one), and 3 MRI's. I have been diagnosed with Multiple Sclerosis.
So within a few months my life has changed, some things have got harder and others better. Physically things can suck, but I have great Doctors and support. More about my MS center in later postings and all the caring people who are helping me cope.
I have a wonderful wife, the lovely Fiona, and MS has made me appreciate and love her more. I may not tell her that enough, but I do. My two kids Abigail and Eleanor a joy watching them grow, a father couldn't be prouder. Our Families who live on the other side of the Atlantic Ocean in various parts of the UK, a beautiful collection of people. Everyone is helping and I couldn't feel happier.
I have Multiple Sclerosis but I am trying not to suffer because of it!
Phil
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