I am moving, the blog that is. You can now visit my new blog at:
blog.missionms.org
Phil
Saturday, March 22, 2008
Missed
I missed the March 20Th self imposed deadline for getting the Mission:MS website launched. I always thought that building a website was real easy, wrong, wrong and double wrong. I have 70% done which were the easy parts, now comes the remaining 30% of pain.
I had a Doctors visit this week and have been given the option of switching my main medication Copaxone, to a new one Tysabri. After some research I have decided to make the move. As if the Dr didn't know it when he mentioned the new drug, he was just taking the horse to water. I now just need do inform the him and the clinic. The reason for the change you ask, no change in my base symptoms. So 7 months of sticking myself each day has made no difference, it was still the right move from the beginning but now on to a hopefully more effective treatment. This new drug is a once a month IV infusion, So even with my feeble mathematics that's on average 29 less needles a month.
What fun.
Happy Easter.
Phil
I had a Doctors visit this week and have been given the option of switching my main medication Copaxone, to a new one Tysabri. After some research I have decided to make the move. As if the Dr didn't know it when he mentioned the new drug, he was just taking the horse to water. I now just need do inform the him and the clinic. The reason for the change you ask, no change in my base symptoms. So 7 months of sticking myself each day has made no difference, it was still the right move from the beginning but now on to a hopefully more effective treatment. This new drug is a once a month IV infusion, So even with my feeble mathematics that's on average 29 less needles a month.
What fun.
Happy Easter.
Phil
Monday, March 17, 2008
George L Geisler or Larry
Our friend Larry died yesterday.
When my wife and I moved to the USA in 1993, Larry was the President of the company my wife worked for, Larry helped us both getting to grips with the big apple. He took us to our first Yankee game ( they beat the Redsox, Yippee), and explained some of the mysteries of you lovely Americans, I am still a little confused about you all though.
Sad.
But happy at the same time, I am not one to sprout the usual things we all say when people die. So here are a few things I remember about Larry.
He came from Iowa, he mentioned it often and always with a smile.
A veteran of Vietnam, wounded and not one to talk about his time there.
Silly Putty, on his desk was a well used ball of the stuff.
Larry had one of those loud but soft voices, like a sonic boom that cheers you up.
He had a laugh that only god would give someone who knew how to use it.
Smoking, Smoking, Smoking. I think Marlboro stock went down when he quit.
He was also exceptionally proud of his son Larry Jr or I should say Dr Geisler.
There are a lot of people mourning Larry, but I look at it this way. Imagine life if you hadn't known him at all........
That would be even worse.
P
When my wife and I moved to the USA in 1993, Larry was the President of the company my wife worked for, Larry helped us both getting to grips with the big apple. He took us to our first Yankee game ( they beat the Redsox, Yippee), and explained some of the mysteries of you lovely Americans, I am still a little confused about you all though.
Sad.
But happy at the same time, I am not one to sprout the usual things we all say when people die. So here are a few things I remember about Larry.
He came from Iowa, he mentioned it often and always with a smile.
A veteran of Vietnam, wounded and not one to talk about his time there.
Silly Putty, on his desk was a well used ball of the stuff.
Larry had one of those loud but soft voices, like a sonic boom that cheers you up.
He had a laugh that only god would give someone who knew how to use it.
Smoking, Smoking, Smoking. I think Marlboro stock went down when he quit.
He was also exceptionally proud of his son Larry Jr or I should say Dr Geisler.
There are a lot of people mourning Larry, but I look at it this way. Imagine life if you hadn't known him at all........
That would be even worse.
P
Saturday, March 15, 2008
Rant
I think it’s time to rant about life, and the reason for the rant is I am sitting on the 6.16pm train to Dover from Penn station and my F*$king legs hurt. When I say hurt I mean really hurt. I have been busy in the store so I have been on my feet most of the day, no chance to rest which is so important with the PAIN IN THER ARSE (MS). So I won’t say I am feeling sorry for myself but it started me thinking about the little F&^K (MS) that has crept in to my life and forever f^&ked up something that was moving along so nicely. And the longer I am dealing with it the more I learn to hate its insidious ways. There are very few things in this world I hate (I even hate the word hate) but the F&^K (MS) is now top of the list, right above broccoli, yes I really don’t like broccoli. It reminds me of green turd (a poo in American) with a tail YUCH!
So here are the top ten things I really hate about MS.
1- Pain
2 -Getting up in the morning, and having to inject my Copaxone. The site reactions are a treat, nice red mounds of pain.
3 –Pain.
4-Fatigue, Imagine getting up in the morning after 10 hours of good sleep and still being knackered (exhausted to you Americans). NOT FUN
5-Pain, yes this is getting repetitive and I am not a being a big baby but this can really be quite tiring.
6-Having to take 150mg of Lyrica and 200mg of Provigil a day, these drugs are still chemicals and god knows what else they are doing to me. I am still not convinced that they work all the time, but I am being a good little boy and popping them when told.
7- Did I mention the pain.
8-MRI machines, a great advance in medical science, but I loathe the friggin thing. Over the last 10 months I have spent about 16 hours in them, hours I will never get back.
9- The pain, it may be boring having to read this so many times, but that is not as boring as the pain!
10-The “You look so good” line that people say with regularity. I look good because of genetics not because of anything else. I feel like shit most of the time.
There you go my nice little rant is over, done and finished. Boy do I feel better now.
Wow this is good it gets me thinking about even more about topics to Rant about. Maybe my next one will be about, New York Taxi Drivers and why we should test cosmetics on them and not on animals.
But no I think one rant a year is more than enough, I will go back to my normal little grizzles.
So here are the top ten things I really hate about MS.
1- Pain
2 -Getting up in the morning, and having to inject my Copaxone. The site reactions are a treat, nice red mounds of pain.
3 –Pain.
4-Fatigue, Imagine getting up in the morning after 10 hours of good sleep and still being knackered (exhausted to you Americans). NOT FUN
5-Pain, yes this is getting repetitive and I am not a being a big baby but this can really be quite tiring.
6-Having to take 150mg of Lyrica and 200mg of Provigil a day, these drugs are still chemicals and god knows what else they are doing to me. I am still not convinced that they work all the time, but I am being a good little boy and popping them when told.
7- Did I mention the pain.
8-MRI machines, a great advance in medical science, but I loathe the friggin thing. Over the last 10 months I have spent about 16 hours in them, hours I will never get back.
9- The pain, it may be boring having to read this so many times, but that is not as boring as the pain!
10-The “You look so good” line that people say with regularity. I look good because of genetics not because of anything else. I feel like shit most of the time.
There you go my nice little rant is over, done and finished. Boy do I feel better now.
Wow this is good it gets me thinking about even more about topics to Rant about. Maybe my next one will be about, New York Taxi Drivers and why we should test cosmetics on them and not on animals.
But no I think one rant a year is more than enough, I will go back to my normal little grizzles.
Thursday, March 13, 2008
MissionMS.org
OK, it is March 10th 2008, I am going to have the Mission:MS website up and running within 10 days.
I have had a creative block ( could be the weird way my brain is set up and not a block at all ). But the last 24 hours I have made a few major advances. I sit on the train each day now typing away, creating the text for the Site. I have acquired pictures ( borrowed more like from other MS sites )and created text ( plagiarism sounds so harsh, but I have borrowed content from multiple websites ). This reminds me of being back at school and having to do a report, you hit the books and rewrite the printed text. I can see from a lot of the websites this is the standard mode of operation. I am not alone and I hope no one gets offended.
A really good disclaimer will be on the website.
Phil
I have had a creative block ( could be the weird way my brain is set up and not a block at all ). But the last 24 hours I have made a few major advances. I sit on the train each day now typing away, creating the text for the Site. I have acquired pictures ( borrowed more like from other MS sites )and created text ( plagiarism sounds so harsh, but I have borrowed content from multiple websites ). This reminds me of being back at school and having to do a report, you hit the books and rewrite the printed text. I can see from a lot of the websites this is the standard mode of operation. I am not alone and I hope no one gets offended.
A really good disclaimer will be on the website.
Phil
Monday, March 10, 2008
Physical Therapy
Today was a visit to the St Barnabas Physical Therapy center, where the lovely Patricia kicked the sh*t out of me. Being Monday I usually get Andreas a nice chap from Greece who loves Football ( that's soccer to you Americans ). I really enjoyed it when we discussed Manchester United ( horrible Team ) being beaten by Portsmouth 1-0. That is similar to the New York Yankees being beaten by a Minor League Girls Team- BTW nothing against Girls baseball.
Back to my workout, Patricia in her infinite wisdom decided to increase all of my exercises. I though working out was boring before, we attained new levels today.
But I did all the physical tortures and still left the clinic on my feet, I had thought of pretending to be exhausted by I think they all see right through me now.
So I am really tired, but whats new.
P
Back to my workout, Patricia in her infinite wisdom decided to increase all of my exercises. I though working out was boring before, we attained new levels today.
But I did all the physical tortures and still left the clinic on my feet, I had thought of pretending to be exhausted by I think they all see right through me now.
So I am really tired, but whats new.
P
Thursday, March 6, 2008
Switzerland
I am off to Switzerland the first week of April, this is a business trip so I will have do some work.
I will add some pictures of the trip when I get back.
P
I will add some pictures of the trip when I get back.
P
The Train
I never thought that my morning commute would be so relaxing as well as being productive.
As you age ( I am still a spring chicken, cluck cluck) you begin to cherish moments where you can switch off from the world. I never thought it would be on the 6.56am to Penn Station, with my fellow 500 travellers. But I now am able slip my headphones in my ears and turn my Ipod on and then mentally drift. The 35 minute ride in to New York ( That is if the blooming train is on time) relaxes me no end. It gives me the chance to let my mind wonder and dear reader this is one scary mind to do that with. I don't know why but this half hour riding towards 10 hours of work I enjoy, yes I am a little warped. Maybe it is the familiarity of seeing the a New Jersey Transit carriage, transporting the same faces each day. We all have our position on the platform, and if the driver isn't being a silly sod the train stops at identical point each day. Maybe not having to think about the trip frees us. And every once in a while my man NORMAN COOK- better known as FAT BOY SLIM- plays on my Ipod and my world returns to full speed ahead.
As I have said before listening to music, is defiantly life's soundtrack.
Phil
As you age ( I am still a spring chicken, cluck cluck) you begin to cherish moments where you can switch off from the world. I never thought it would be on the 6.56am to Penn Station, with my fellow 500 travellers. But I now am able slip my headphones in my ears and turn my Ipod on and then mentally drift. The 35 minute ride in to New York ( That is if the blooming train is on time) relaxes me no end. It gives me the chance to let my mind wonder and dear reader this is one scary mind to do that with. I don't know why but this half hour riding towards 10 hours of work I enjoy, yes I am a little warped. Maybe it is the familiarity of seeing the a New Jersey Transit carriage, transporting the same faces each day. We all have our position on the platform, and if the driver isn't being a silly sod the train stops at identical point each day. Maybe not having to think about the trip frees us. And every once in a while my man NORMAN COOK- better known as FAT BOY SLIM- plays on my Ipod and my world returns to full speed ahead.
As I have said before listening to music, is defiantly life's soundtrack.
Phil
Tuesday, March 4, 2008
March
Crikey March has started, a month of birthdays (mine included) and the clocks going forward.
A few updates first:
I have to admit I am very very slowly setting up the Mission:MS website. I am a professional talker, when it comes to putting the chat in to words and pictures I have enormous trouble. I have been very lucky in being sent Thom Phar from GoDaddy.com to help me through this process, I must be driving him crazy (he always sounds calm though).
Had another MRI marathon yesterday, I think my Doctor really likes me, judging by how many pictures he has of my internal organs and nervous system. I do have to admit I see the pictures and I am very impressed how good they look. I may ask Fiona if I can frame one and hang it on the wall of the living room.
Also a two-hour trip to the dentist in the morning for a root canal. All I can say is I left with a numb mouth and number wallet.
Thinking back to the MRI, what a busy place the imaging center was. Full of worried looking people, It is a shame that I feel like an old hand at this lying in an MRI machine. I am what you would call Panamax with these machines and this time two technicians the calm Andre and efficient Jay got me through. God bless them both. My last experience wasn’t good I was beginning to panic, but I think the pain from the root canal took my mind off the whole thing this time.
A few updates first:
I have to admit I am very very slowly setting up the Mission:MS website. I am a professional talker, when it comes to putting the chat in to words and pictures I have enormous trouble. I have been very lucky in being sent Thom Phar from GoDaddy.com to help me through this process, I must be driving him crazy (he always sounds calm though).
Had another MRI marathon yesterday, I think my Doctor really likes me, judging by how many pictures he has of my internal organs and nervous system. I do have to admit I see the pictures and I am very impressed how good they look. I may ask Fiona if I can frame one and hang it on the wall of the living room.
Also a two-hour trip to the dentist in the morning for a root canal. All I can say is I left with a numb mouth and number wallet.
Thinking back to the MRI, what a busy place the imaging center was. Full of worried looking people, It is a shame that I feel like an old hand at this lying in an MRI machine. I am what you would call Panamax with these machines and this time two technicians the calm Andre and efficient Jay got me through. God bless them both. My last experience wasn’t good I was beginning to panic, but I think the pain from the root canal took my mind off the whole thing this time.
Saturday, March 1, 2008
Lazy
Saturday morning, I am just awake and getting ready to go to work.
I realise how long it has been since I added a few words here, shame on me.
I will be adding more later this morning.
P
I realise how long it has been since I added a few words here, shame on me.
I will be adding more later this morning.
P
Wednesday, February 13, 2008
Missing
I lost my favourite headphones made by V-Moda, looked everywhere and not a sign.
This caps off an evening where I spent 30 minutes driving 1 mile up the hill from the train station. Let me explain. It started to snow heavily yesterday afternoon so I hopped on the train got to South Orange train station, where there was more white powder than at an Amy Winehouse party. Snow all over the place, no scraper for the windows (blast). Finally got on my way only to find my car (German) with rear wheel drive couldn't make it up the hill home!!!
After lots of cursing and general shouting, I drove towards Maplewood (next town over) and swung the other side of the mountain where there is a more gradual road up to my house.
Now the headphone part, I really enjoy listening to music on the train- so no music this morning- I miss Elvis (Costello that is), and Keith Frank ( Zydeco music), you should check him out. No Boom Town Rats, really in to them at the moment. Music is a major part of my commute, so on the way to work I bought a pair of sony headphones for the ride home.
This caps off an evening where I spent 30 minutes driving 1 mile up the hill from the train station. Let me explain. It started to snow heavily yesterday afternoon so I hopped on the train got to South Orange train station, where there was more white powder than at an Amy Winehouse party. Snow all over the place, no scraper for the windows (blast). Finally got on my way only to find my car (German) with rear wheel drive couldn't make it up the hill home!!!
After lots of cursing and general shouting, I drove towards Maplewood (next town over) and swung the other side of the mountain where there is a more gradual road up to my house.
Now the headphone part, I really enjoy listening to music on the train- so no music this morning- I miss Elvis (Costello that is), and Keith Frank ( Zydeco music), you should check him out. No Boom Town Rats, really in to them at the moment. Music is a major part of my commute, so on the way to work I bought a pair of sony headphones for the ride home.
Friday, February 8, 2008
Very Very Busy
I need a clone, or maybe a few more hours in the day about 5 should do. Things are getting hectic. Mission:MS became a legal entity last Friday- Thank You New York State- which puts pressure on me to get my bum in gear and raise some money ( it is a big bottom I have, so hopefully the money will match).
I have hair, The last 8 years I have cut my hair so short my wife calls me a toilet brush ( I don't understand that comment as my hair is a lot shorter that that). But now I am beginning to have a Mane, I just bought my first hair brush in ten years and now I use conditioner. Crikey I will no doubt start going to a stylist when it needs cutting, I miss my visits to my old school Italian barber Tony, with his small talk about his 10 kids ( Tony is over 70, but still works 6 days a week). The joy of his sneak hot towel attack, wow those things hurt.
The physical therapy is making my legs hurt alot more, is this supposed to happen?
Phil
I have hair, The last 8 years I have cut my hair so short my wife calls me a toilet brush ( I don't understand that comment as my hair is a lot shorter that that). But now I am beginning to have a Mane, I just bought my first hair brush in ten years and now I use conditioner. Crikey I will no doubt start going to a stylist when it needs cutting, I miss my visits to my old school Italian barber Tony, with his small talk about his 10 kids ( Tony is over 70, but still works 6 days a week). The joy of his sneak hot towel attack, wow those things hurt.
The physical therapy is making my legs hurt alot more, is this supposed to happen?
Phil
Saturday, February 2, 2008
Balance
Had a very interesting visit to the Physical therapy Center. After some basic exercises and a balance test we discovered my balance needs improving. This will be done on a special machine which a platform that I have to keep level by shifting my position. Harder than it sounds but a lot of fun. Patricia my Physical Therapist is really brilliant.
I have a lot of respect for a really excellent website called joolysjoint.com. I may of mentioned this site before, but it is worth repeating how good a job they do and how important these places are to MS sufferers. So JJ keep up the good work.
Phil
I have a lot of respect for a really excellent website called joolysjoint.com. I may of mentioned this site before, but it is worth repeating how good a job they do and how important these places are to MS sufferers. So JJ keep up the good work.
Phil
Thursday, January 31, 2008
Nice meeting
Had a meeting last night with Kerry and Katie, our Media & PR super stars. The style of MissionMS has been formulated as well as a logo (I will post a copy soon). Working on direct mail pieces, which are the first contact between Mission:MS and potential donors. The style is brilliant and very creative and it will also be adopted as the format on our website. Exciting!
I start Physio this afternoon, I am sure it will be lots of bending , stretching and creaking of my legs.
An eye opening discovery, and I hope I understood this correctly. To qualify for Medicaid in the USA you need to earn under $1590 a month and have less than $ 2000 of financial worth. You will then be given help in paying for an MS drug, the only problem will be the approximatly $ 350 a month co-pay (holy sh*t). Which even with my bad maths leaves $ 1240 a month to live on or to make it sound even more scary $40 A DAY. I don't know how people do it.
Phil
I start Physio this afternoon, I am sure it will be lots of bending , stretching and creaking of my legs.
An eye opening discovery, and I hope I understood this correctly. To qualify for Medicaid in the USA you need to earn under $1590 a month and have less than $ 2000 of financial worth. You will then be given help in paying for an MS drug, the only problem will be the approximatly $ 350 a month co-pay (holy sh*t). Which even with my bad maths leaves $ 1240 a month to live on or to make it sound even more scary $40 A DAY. I don't know how people do it.
Phil
Tuesday, January 29, 2008
Quick
This month has flown by, it is almost February.
Still working on setting up Mission MS, paperwork, paperwork, paperwork. Thank goodness for our Lawyer Ann Pincess Burman. Almost there just a few more hoops the government are making us jump through.
I need suggestions of content for the website, all ideas are welcome and help would be appreciated. The main objective of the site is to get Mission MS noticed, as well as information about fund raisers and how the money is being spent. So please, please help.
Phil
Still working on setting up Mission MS, paperwork, paperwork, paperwork. Thank goodness for our Lawyer Ann Pincess Burman. Almost there just a few more hoops the government are making us jump through.
I need suggestions of content for the website, all ideas are welcome and help would be appreciated. The main objective of the site is to get Mission MS noticed, as well as information about fund raisers and how the money is being spent. So please, please help.
Phil
Thursday, January 24, 2008
Vacation
I have just had the last 8 days off, what joy no work. My older brother Tony came to New Jersey for a visit, so we had a great week zooming around the North East of America.
I start Physio Therapy next week, the therapist is very nice, and not as I thought a Russian Shot Putter wanting to break me in to little pieces. It would appear as though my left leg is having problems so I will be working on getting it in to shape.
P
I start Physio Therapy next week, the therapist is very nice, and not as I thought a Russian Shot Putter wanting to break me in to little pieces. It would appear as though my left leg is having problems so I will be working on getting it in to shape.
P
Tuesday, January 15, 2008
GoDaddy
I have been in contact with the lovely people at GoDaddy.com. I sent a letter to the President asking for help with the Mission MS website. So yesterday Nima assistant to Mr Bob Parsons President of GoDaddy called offering lots of help.
Note to world.
I may be biased, but if you ever need a domain name, or help building a website only go to:
The older I get the more I realise that companies are their people, so good people = good company. GoDaddy are the perfect example of this, so more power to them all.
I feel excited that the work can start on an online presence.
Phil
PS Not to whammy myself, but I have felt really good the last 2 days.
Note to world.
I may be biased, but if you ever need a domain name, or help building a website only go to:
The older I get the more I realise that companies are their people, so good people = good company. GoDaddy are the perfect example of this, so more power to them all.
I feel excited that the work can start on an online presence.
Phil
PS Not to whammy myself, but I have felt really good the last 2 days.
Friday, January 11, 2008
I try to think that I have a little tech savvy, and to be honest I have spent rather a lot of time holding for a support technician, when I have killed, Deleted or just plain screwed up a piece of technology.
So last night I was very pleased when I was able to set up my own e-mail for Mission MS. I will point out that after I read the instructions I think my 7 year old daughter could of done it quicker than I did. But set up it is, so my new e-mail address is.
Philip@MissionMS.com
I have a Physical Therapy Evaluation next week, I have visions of a woman who looks like a Russian Shot Putter, trying to bend me in half or torture secrets out of me. To say I would prefer to have my legs waxed is an understatement.
Phil
So last night I was very pleased when I was able to set up my own e-mail for Mission MS. I will point out that after I read the instructions I think my 7 year old daughter could of done it quicker than I did. But set up it is, so my new e-mail address is.
Philip@MissionMS.com
I have a Physical Therapy Evaluation next week, I have visions of a woman who looks like a Russian Shot Putter, trying to bend me in half or torture secrets out of me. To say I would prefer to have my legs waxed is an understatement.
Phil
Tuesday, January 8, 2008
The joys of modern flipping technology
I was in the MRI machine yesterday morning for over 2 hours. It felt like 2 weeks underwater with no aqualung. Next time they are gonna have to give me some major drugs, just to get me in the same room with that blooming machine. And if that wasn't enough I had 1 hour 30 minutes in the dentists chair right after.
MRI results next week and the fitting of my new crown.
They only thing that got me through the MRI was thinking of the revenge I could have on my Doctor, when I finally get his wife in to my place of work. His wallet will take a year to stop hurting.
The dentist will be easier I am gonna start sucking on cloves of garlic 6 hours before my next appointment.
MRI results next week and the fitting of my new crown.
They only thing that got me through the MRI was thinking of the revenge I could have on my Doctor, when I finally get his wife in to my place of work. His wallet will take a year to stop hurting.
The dentist will be easier I am gonna start sucking on cloves of garlic 6 hours before my next appointment.
Monday, January 7, 2008
MRI
Just enough time to make a new post, in 15 minutes I am off to have a nice long MRI. Boring is the word of the morning, I do wish they could make a faster machine. Thank god I am not claustrophobic because that coupled with my fidgeting would make the MRI unbearable.
This is part of my 6 month check up, so lets hope I don't have much change.
Phil
This is part of my 6 month check up, so lets hope I don't have much change.
Phil
Friday, January 4, 2008
2008
It's the start of 2008, here are a few things I hope for.
World Peace.
Winning the lottery.
Gas at $1 a gallon.
I become President.
MS gives me a break.
Now the first 4 are highly unlikely, I just hope the 5Th will be good. But if not, I will take winning the lottery as my second choice. I would prefer to be rich and sick, than poor and sick. I don't ask for much, anything north of 20 million would be just fine. Doesn't this make me sound like a self centered bugger, and dear reader you would be 100% right.
I never used to think about the coming year, but things change and situations occur. So I have started thinking about the next 12 months, what I want to do, what I can do and what the PAIN IN THE BUTT ( MS ) will let me do.
So here is a list.
Fly Fishing.
I started to get in to this last year, lots of fun and my guide Adam is really understanding of my condition.
Flying Kites.
Even if I have to buy a wind machine, or eat lots of beans. This year I am going to fly my kites!
Need wind, lots of wind.....
Listen.
This is going to be the toughest. I need to listen more to my Wife ( I think I'm always all ears ), and my Doctor and Nurses., they keep telling me to slow down. he he he he slow down, me, NEVER.
Charity.
This is the year of Mission MS. A year to raise money, a year to care.
Phil
World Peace.
Winning the lottery.
Gas at $1 a gallon.
I become President.
MS gives me a break.
Now the first 4 are highly unlikely, I just hope the 5Th will be good. But if not, I will take winning the lottery as my second choice. I would prefer to be rich and sick, than poor and sick. I don't ask for much, anything north of 20 million would be just fine. Doesn't this make me sound like a self centered bugger, and dear reader you would be 100% right.
I never used to think about the coming year, but things change and situations occur. So I have started thinking about the next 12 months, what I want to do, what I can do and what the PAIN IN THE BUTT ( MS ) will let me do.
So here is a list.
Fly Fishing.
I started to get in to this last year, lots of fun and my guide Adam is really understanding of my condition.
Flying Kites.
Even if I have to buy a wind machine, or eat lots of beans. This year I am going to fly my kites!
Need wind, lots of wind.....
Listen.
This is going to be the toughest. I need to listen more to my Wife ( I think I'm always all ears ), and my Doctor and Nurses., they keep telling me to slow down. he he he he slow down, me, NEVER.
Charity.
This is the year of Mission MS. A year to raise money, a year to care.
Phil
Thursday, January 3, 2008
Unhappy
Not having a good day, bad over night my legs are really being a pain. Woke in the middle of the night and both of my arms were numb. Oh Bollocks!
I have called in sick today, the effort just getting to work would finish me off, I think I over did it yesterday. I was busy in the store and didn't take the time to rest. Stupid!
I had a quick chat with Judy the lovely nurse at my MS center and she is going to send me for a Physical Therapy Evaluation, sounds like a lot of fun. Next Monday I have an MRI of my brain and lumbar region, this is boring, boring and did I say amazingly BORING. It's part of my 6 month evaluation, I can't believe I have been on my Copaxone almost half a year. I must be honest I can see no difference, that's why I am having the lengthy MRI they are looking for more lesions. I will try to get a scan of my MRI and publish it here. This will also confirm that my brain is in my head and not in my arse.....
Phil
I have called in sick today, the effort just getting to work would finish me off, I think I over did it yesterday. I was busy in the store and didn't take the time to rest. Stupid!
I had a quick chat with Judy the lovely nurse at my MS center and she is going to send me for a Physical Therapy Evaluation, sounds like a lot of fun. Next Monday I have an MRI of my brain and lumbar region, this is boring, boring and did I say amazingly BORING. It's part of my 6 month evaluation, I can't believe I have been on my Copaxone almost half a year. I must be honest I can see no difference, that's why I am having the lengthy MRI they are looking for more lesions. I will try to get a scan of my MRI and publish it here. This will also confirm that my brain is in my head and not in my arse.....
Phil
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